MND / ALS
People with a traumatic brain injury (TBI) were more likely to die from ALS within two years of injury, a recent study found, although researchers say the link may reflect undiagnosed ALS. Researchers said reverse causation may explain the association, meaning people with early, undiagnosed ALS could be more likely to experience falls and other [...]
Motor neurone disease (MND) patients will get faster access to care and support under a new government pathway aimed at reducing delays and fragmented services. Health and social care secretary Yvette Cooper announced the plans on Wednesday during a visit to the Rob Burrow Centre for Motor Neurone Disease in Leeds. The announcement comes as [...]
ABILITY Neurotech has announced it has received Investigational Medical Device Dossier (IMDD) approval from the Medical Research Ethics Committee (MREC) NedMec in the Netherlands to initiate the first chronic implantation study of the company’s fully implantable wireless optical-link ECoG BCI in patients with amyotrophic lateral sclerosis (ALS). ABILITY is a clinical-stage brain-computer interface (BCI) company [...]
A new MND research breakthrough could help shape treatment research and change how scientists understand the disease. Vesalic Limited, an early-stage biotech company focused on neurodegenerative diseases, announced the findings, with RD Research developing the data platform behind the work. The discovery could inform clinical research and speed the development of treatments for people living [...]
The Longitude Prize on ALS is awarding £2 million to 20 of the world’s most promising multidisciplinary teams of innovators using AI to find new drug targets for ALS (amyotrophic lateral sclerosis) – the most common form of MND (motor neurone disease). The Longitude Prize on ALS is a £7.5m global challenge prize designed to [...]
A forthcoming study will test whether statins, a cholesterol drug, could help people with MND live longer. There is no cure for MND, which causes muscle weakness, can lead people to lose the ability to walk and gets worse over time. People with the progressive neurodegenerative disease usually die within three to five years after [...]
Retinal scans could help doctors tell similar brain diseases apart, with research suggesting they may help detect conditions including ALS and Alzheimer's. There is currently no objective diagnostic test for amyotrophic lateral sclerosis, or ALS, a progressive condition that affects the nerve cells controlling movement, or for frontotemporal lobar dementia with TDP-43, known as FTLD-TDP. [...]
A US researcher has made a promising breakthrough in the quest to help people with amyotrophic lateral sclerosis (ALS). In a recent study, University of Missouri’s Smita Saxena showed that a natural molecule called GM1 can reach the brain when it’s wrapped inside a tiny fat-based bubble. In early laboratory testing, this approach helped improve [...]
People living with motor neurone disease in Sussex are receiving increased support and better access to clinical trials following an expansion of local services. The Sussex MND Network has moved to University Hospitals Sussex, bringing it closer to the clinical teams that support patients every day. The trust said the change is improving joined-up care, [...]
The MND Association has trebled its investment in the MND-SMART trial to speed research into treatments for motor neurone disease. The charity has committed £1.5m over five years to the MND-SMART platform, up from £0.5m originally planned. MND Scotland, the founding funder since 2018, remains a partner and will contribute £1m to the £2.5m collaboration. [...]
