MND / ALS
More than 1500 attended the MND Association’s international symposium to hear the latest advances in research for the condition. The annual event is the largest medical and scientific conference on MND and attracted delegates from 48 countries, with 80 per cent of the number attending in person. With a shared passion for MND research and [...]
Research consortium, Answer ALS, and the Alzheimer’s Disease Data Initiative (AD Data Initiative), are embarking on a partnership to integrate the AD Data Initiative’s AD Workbench with Answer ALS’s Neuromine Data Portal. This collaboration will reshape the landscape of neurodegenerative disease research by providing a unified, single access platform for data sharing and analysis. The [...]
The third global, multi-million pound Longitude Prize will be launched in 2025 focusing on Amyotrophic lateral sclerosis (ALS). It will incentivise the use of AI and machine-learning approaches to transform drug discovery for the treatment of ALS, a form of motor neurone disease (MND), opening the door for new treatments across other neurodegenerative diseases. The [...]
Promising new research to develop gene therapy to treat motor neurone disease (MND) and other conditions like dementia has secured major investment. The new potential treatment discovered by a team at University College London (UCL) and backed by the MND Association, My Name’5 Doddie Foundation and LifeArc, has moved one step closer to people living [...]
Approximately 5,000 people in the U.S. develop amyotrophic lateral sclerosis (ALS) each year. On average, they survive for only two to five years after being diagnosed, according to the Centers for Disease Control and Prevention. The rapidly progressing neurodegenerative disease causes the death of neurons in the brain and spinal cord, resulting in muscle weakness, [...]
A pioneering study has revealed promising results for a new treatment targeting motor neurone disease (MND). The novel drug compound, Ellorarxine, developed by Nevrargenics, has demonstrated significant potential in improving neuronal health and nervous system regeneration in MND sufferers. The study has shown that Ellorarxine exhibits antioxidant and anti-inflammatory effects at remarkably low concentrations. One of [...]
HRH the Princess Royal has underlined the importance of collaboration in the search for a motor neurone disease cure. The royal was speaking at the MND Association’s Countdown to a Cure reception, held this week in London. The event was an opportunity to reflect on the charity's support for MND research and how some of its [...]
A new campaign is aiming to help more people living with motor neurone disease (MND) to access a ground-breaking drug. UK charity the MND Association has launched the Prescribe Life campaign and is urging the National Institute for Health and Care Excellence (NICE) to use its discretionary powers to evaluate the drug tofersen in the [...]
Experts from the University of Nottingham have worked with people living with Motor Neurone Disease (MND), to share personal stories for other people with MND who want to understand what it is like to live with tracheostomy ventilation (TV). As part of a major study, Dr Eleanor Wilson and Dr Nicola Turner in the School [...]
The ALS Network, formerly ALS Golden West, has awarded a $100,000 grant through its global research programme to Amprion, a global leader advancing diagnosis of neurodegenerative disorders through seed amplification testing. The San Diego-based diagnostics company seeks to understand the cause of sporadic ALS and actively assists in the development of potential therapies by supporting [...]
