MND / ALS
A four-person crew is attempting a 900-mile row from Land’s End to John O’Groats to raise £57m for motor neurone disease (MND) research over four years. The Row 4 MND team were set to leave Cornwall at around 08:30 BST and aim to reach Scotland via the Irish Sea in about 21 days. MND is [...]
The first research nurse has joined a new UK-wide network aiming to improve access to motor neurone disease trials. Andy Hamilton has been appointed at Newcastle’s MND Care and Research Centre as part of a £7.2m programme to embed specialist nurses in 24 MND Care Centres and Networks across England, Wales and Northern Ireland. The [...]
Northern will name a train in honour of Rob Burrow, the Leeds Rhinos star who campaigned for motor neurone disease research before his death in June. The train operator is working with Burrow’s family and the MND Association to design artwork for the tribute, which aims to raise awareness of motor neurone disease – a [...]
The Longitude Prize on ALS, a new £7.5 million global challenge prize, has launched today to incentivise and reward cutting edge AI-based approaches to transform drug discovery for the treatment of ALS (amyotrophic lateral sclerosis), the most common form of MND (motor neurone disease). ALS is a progressive neurodegenerative disease that damages the nerves in [...]
A brain-computer interface has enabled a man with ALS to speak in real time by converting brain activity directly into a synthetic voice. The investigational system allows the user to communicate with family through a digital vocal tract that simulates speech, enabling him to adjust intonation and even produce simple melodies. Unlike earlier technologies that [...]
During REM sleep, the body enters a state of paralysis. This can pose a danger for patients with weakened diaphragms due to neuromuscular diseases. Now new research published at the ATS 2025 International Conference has shown that antidepressants that suppress REM sleep are associated with improved survival in people with amyotrophic lateral sclerosis (ALS). The [...]
A campaign focused on people with a rare form of terminal illness who are unable to access a groundbreaking new drug, despite it being currently provided for free to the NHS, has reached 10,000 signatures on its petition. The findings show access to tofersen, the first effective new motor neurone disease (MND) treatment for decades, [...]
The Motor Neurone Disease (MND) Association is urging the government to take action as people with a rare form of MND are unable to access a groundbreaking new drug, despite it being currently provided for free to the NHS. Tofersen is the first effective new MND treatment for decades, however, access to the drug has [...]
The Motor Neurone Disease (MND) Association has bolstered its research leadership team to keep pace with the growing opportunities in the MND research space and a drive to fund treatment-focused, personalised and patient centred research. Dr Mike Rogers MBE has been appointed as the Director of Research and Innovation, with Dr Brian Dickie MBE becoming [...]
Amyotrophic lateral sclerosis (ALS) is a devastating neurodegenerative disease that affects motor neurons. The average life span after diagnosis of this incurable disease is two to five years. Now, researchers have identified a new lead: tiny, antenna-like structures 0n cells called primary cilia, which could open a potential new avenue for therapeutic development. Despite extensive [...]
