MND / ALS

  • Early career MND researchers to begin new Pre-Fellowship scheme

      New scheme bridges funding gap to encourage researchers continue the search for a cure to devastating MND

    Two ambitious early career researchers with a passion to investigate potential causes and therapies for motor neurone disease (MND) will receive a new type of funding through the MND Associations new Pre-Fellowship scheme.

    The first-of-its-kind Pre-Fellowship scheme for MND is funded by the MND Association and administered by MND Scotland.

    Following a rigorous application process, Dr Alannah Mole, of the University of Sheffield, and Dr Emily Carroll, from the University of Oxford, have each been awarded a grant which provides 12-18 months of pump primingfunds under the scheme that aims to bridge a long-acknowledged funding gap.

  • World-leading MND researcher joins Samsara Therapeutics

    Professor Dame Pamela Shaw joins to help advance development of its ALS/MND drug candidate SAM001

  • Interview: A new age of ALS treatment?

    NR Times reports on the much-anticipated trial of ALS treatment AMX0035, in an interview with Machelle Manuel, head of global medical affairs at its creator Amylyx.

    Recently approved for treating ALS in the US, AMX0035 is now the subject of a major phase 3 clinical trial taking place across the US and Europe. ALS is a relentlessly progressive and fatal neurodegenerative disorder that up until recent decades was thought to be impossible to treat. While the cause of the condition is still uncertain, a new wave of treatments is coming to the fore. Sign up to NR Times to read our interview in full.
  • End of life care for Motor Neurone Disease

    Cavendish Homecare discuss MND and the importance of planning for the disease in the final stages

  • MND Condition update: “MND isn’t incurable, it’s underfunded”

    Motor Neurone Disease research has long been underfunded, but the pathway towards better treatments - and potentially a cure - seems within reach.  Over 2000 people are diagnosed with motor neurone disease (MND) in the UK each year. In the US, this figure is closer to 10,000. Of these people, a third die within the [...]

  • Scientists welcome results from trial investigating Interleukin-2 in MND patients

    Researchers have shown "top-line" results from the phase 2b trial of low dose Interleukin-2 (ld IL2) in MND patients. The MIROCALS (Modifying Immune Response and Outcomes in ALS) Trial Consortium has announced the findings at an online audience by Dr Gilbert Bensimon, Centre Hospitalier Universitaire de Nîmes, on the opening day of the 33rd International Symposium [...]

  • Unpaid carers of people with MND work over 75 hours per week, report reveals

    Findings prompt MND Association to launch campaign calling on government to undertake a full review of carers’ assessments

  • New MND support launched by The Walton Centre

    A new clinic has been created to offer additional dysphagia interventions

  • Rugby study reveals risk of neurodegenerative disease

    Risk of dementia is twice as high as general population, rising to up to 15 times as high for MND, shocking new study reveals

  • ‘Rethink genetic testing guidelines for MND’

    Calls made as research reveals diagnosis of a genetic cause of ALS in hundreds of people could be missed due to rules around testing