Patients & families

The Child Brain Injury Trust has announced the launch of its newly restructured Legal Support Service which provides free, independent legal advice to families and young people affected by childhood-acquired brain injury (ABI). When a child acquires a brain injury, the effects can be life-altering. Families are often left facing difficult legal decisions about education, [...]

By Beata Roberts, Case Manager, ILS Case Management Becoming a parent is a significant change in anybody’s life. It requires a resilience and flexible thinking around new routines as well as adjusting to being responsible for a baby. It is a journey filled with joy, excitement and fear at the same time. Imagine for a [...]

One in two family caregivers of people with Parkinson’s are juggling their responsibilities with an estimated 37 hours a week of employment, a new report suggests.  The scale of the challenge faced on a daily basis by many family caregivers of people with Parkinson’s has been set out in a new report. It highlights the [...]

New technology and innovations in care will improve the lives of unpaid carers and care users following a funding boost announced by the Minister of State for Care. The Minister of State for Care, Stephen Kinnock, has announced a £22.6 million boost for initiatives that will improve support for unpaid carers in England, including projects [...]

New research from the University of Zurich, based on data from more than 28,000 caregivers in three countries, shows that the longer individuals spend caring for loved ones, the more their well-being suffers, regardless of the caregiving context. These findings underscore the need for policy discussions to alleviate the burden of informal care. The prevalence [...]

Americans believe volunteering to help strangers contributes more to society than providing care for family or friends, even though they contribute billions of dollars’ worth of labour in unpaid caregiving every year, according to research published by the American Psychological Association. This perception could lead Americans of lower socioeconomic status to feel like they have [...]

Providing care for a family member with a disabling illness can be a demanding job that leaves many people unable to sleep, but an online insomnia treatment developed at the University of Virginia School of Medicine can help, new research shows. Not only did the SHUTi (Sleep Healthy Using the Internet) sleep intervention help caregivers [...]

Communication is more than just what we say. According to Mehrabian’s Communication Model (1971), only 7% of our communication is verbal and 93% is non-verbal. Most of our predictions and inferences used within communication are based on a person’s non-verbal behaviour, using body language, facial expressions or tone of voice. Individuals with acquired brain injury [...]

UK charity Cauda Equina Champions has announced the launch of its unique new service to support family members, carers and friends of people affected by Cauda Equina Syndrome (CES). Family members and carers are impacted in a tremendous way after a loved one or friend develops disabilities and mental health problems, following a CES diagnosis. [...]

Northern Ireland-based Western Health and Social Care Trust is to pay compensation of nearly £21 million to the family of a baby that suffered brain damage during an emergency caesarean. The young girl, who now has to spend her life in a wheelchair, was left with cerebral palsy and brain damage from an emergency C-section. [...]