Patients & families
For people living with neurological conditions and their families.
- Multiple sclerosis8 Sep
A new online activity has been launched to help explain the relationship between multiple sclerosis (MS) and coronavirus to children.
The activity, designed by Digesting Science and aimed at families with six- to 12-year-olds, takes around 20 to 30 minutes, and covers the immune system and how white blood cells fight infections like coronavirus and whether treating MS makes you more vulnerable to coronavirus. Those wanting to try the activity will need some props, including pasta, paper or card, scissors, drinking glasses, a bowl, a blindfold, a pen and some tape. Digesting Science recently hosted a series of online events for young people with MS covering the disease and issues around Covid-19, emotion, diet and lifestyle, and cognitive changes in school. - Legal28 Jul
Karen Ledger (KL): When brain injury occurs, it's like a bomb going off in the family. Life will never be the same again for any of the members of that family. People will be shocked, bewildered and overwhelmed, and they then have to go through a complicated process of adjustment, and people reach that adjustment at different stages. The person with the brain injury will generally have a neuropsychologist assigned to support them. Most will pay attention to people's feelings and emotions, but the rest of the family may not have any psychological support. This situation doesn't get better of itself without professional input, it can get worse and people’s mental health can and often does spiral down. Louise Jenkins (LJ): It’s a particular challenge if you've got someone with little or no insight. They often won't recognise the need for or be willing to engage with neuropsychological treatment until much further down the line, by which stage, the family may have entered a more advanced stage of crisis and their whole family unit may be at risk of breakdown. There are complex emotions involved in the adjustment process following trauma which include shock, guilt and loss.
- Therapy18 Dec
In this age of strained healthcare resources, all therapists must be able to quickly and succinctly evidence their value. In the neurologic strand of music therapy, this is aided by an approach in which assessments feature prominently. In the psychodynamic branch of music therapy with children and families, however, measuring and reporting progress has long been a significant challenge. Why is it important to assess families and more specifically, the interactions between parent and child? The most crucial reason would be to protect the children from negative parenting behaviours such as neglect or abuse.






