The National Institutes of Health (NIH) is calling for individuals to serve on the Federal Advisory Council on Parkinson’s Research, Care, and Services that will provide advice on Parkinson’s-related issues, including recommendations for priority actions to be included in the national plan.
The implementation US’s National Plan to End Parkinson’s Act, which aims to eliminate Parkinson’s Disease, is to be led by the NIH with support from the U.S. Department of Health and Human Services (HHS) Office of the Assistant Secretary for Health (OASH).
The Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act is the first federal legislation dedicated to ending Parkinson’s Disease.
The goals of the act are to coordinate Parkinson’s-related research and services across federal agencies; speed the development of safe and effective treatments; improve early diagnosis; facilitate coordination of care and treatment; reduce the impact of Parkinson’s on the physical, mental, and social health of individuals living with Parkinson’s and their caregivers and families; and increase international coordination.
Under the Act, passed on 23 May, a plan to “prevent and cure Parkinson’s, ameliorate its symptoms, and slow or stop its progression” will be regularly updated and a Federal Advisory Council on Parkinson’s Research, Care, and Services will be established.
In anticipation of implementing this act, NIH is now seeking nominations for individuals to serve on the Federal Advisory Council on Parkinson’s Research, Care, and Services.
The council will include two patient advocates, including one individual who is living with young-onset PD; a family caregiver; a healthcare provider; two biomedical researchers with Parkinson’s related expertise; a movement disorders specialist who treats people with Parkinson’s; a dementia specialist who treats people with Parkinson’s; and two representatives from Parkinson’s-related non-profit organizations.
Additionally, the council will have representatives from 13 federal agencies that are involved in Parkinson’s research, clinical care, or care services.
The council will be co-chaired by the director of the NIH’s National Institute of Neurological Disorders and Stroke and the associate deputy director for the Office of Science and Medicine for HHS’ OASH.
To find out more please visit: https://www.ninds.nih.gov/current-research/trans-agency-activities/national-plan-end-parkinsons
