News
Patients and staff at a charity which looks after people with complex mental health needs have taken the ‘Co-production Pledge’ to ensure patients have an equal say in their care. The pledge – which everyone at St Andrew’s Healthcare is being urged to take - has been created as part of the hospital’s Co-production Framework [...]
A campaign focused on people with a rare form of terminal illness who are unable to access a groundbreaking new drug, despite it being currently provided for free to the NHS, has reached 10,000 signatures on its petition. The findings show access to tofersen, the first effective new motor neurone disease (MND) treatment for decades, [...]
Studies suggesting that certain viral infections may influence the onset of Alzheimer's diseases are gaining attention. To learn more, a research team has succeeded in breaking the link between viral infection and Alzheimer's disease using a new treatment candidate. The researchers have identified the association between viral infection and Alzheimer's disease and blocked the connection using [...]
Gene therapy company uniQure recently announced that the U.S. Food and Drug Administration (FDA) has granted Breakthrough Therapy designation to AMT-130 for the treatment of Huntington’s disease. There are currently no disease-modifying therapies available for Huntington's Disease, highlighting the urgent need for innovation. uniQure has stated that AMT-130's Breakthrough Therapy designation has been granted based on clinical [...]
With the closure of essential therapy providers like the National Bobath Cerebral Palsy Centre, families of children with movement disorders are facing a devastating crisis. Vital specialist services are vanishing due to chronic underfunding, leaving parents scrambling to find the support their children desperately need. Disability charities are under unprecedented strain. With little to no [...]
Mitochondrial DNA (mtDNA) editing has emerged as a revolutionary approach in the fight against neurodegenerative diseases. As these diseases continue to impose a significant global health burden, the innovative use of mitochondrial gene editing offers a promising avenue to address their underlying causes. The dysfunction of mitochondria, triggered by mutations in mtDNA, is now recognised [...]
Charity The Spinal Injuries Association has issued a statement in response to the UK Government's Immigration White Paper. Prime Minister Kier Stamer said that the 'strategy will finally take back control of our borders and close the book on a squalid chapter for our politics, our economy, and our country.' The SIA responded: "The Spinal [...]
SweetTree Home Care Services reveal how adopting a structured, outcome-driven approach helped Mark rebuild his life after brain injury. Rebuilding a life after brain injury: Mark's story Imagine forgetting basic skills—how to brush your teeth, make a cup of tea, or even where you live. For Mark, a 49-year-old man living in London with temporal [...]
This blog was written thanks to the expertise of the Brian Barr Solicitors team, including Alex Cohen, Philip Cohen and Steven Akerman, leading experts in compensation claims for chronic pain and serious injury. For those living with fibromyalgia, chronic pain, CRPS or brain injuries, stress is not just an emotional burden. It can worsen physical symptoms, complicate recovery, [...]
Results from the Phase 2 PIVOT-HD study of PTC518 (votoplam) in Stage 2 and Stage 3 Huntington's disease (HD) patients demonstrated that the treatment met its primary endpoint of reduction in blood Huntingtin (HTT) protein levels. The treatment showed a reduction in HTT protein levels at Week 12 and favourable safety and tolerability. The 12-month [...]
