Motor neurone disease news
Former England rugby captain Lewis Moody has revealed he has been diagnosed with motor neurone disease (MND). The 47-year-old World Cup winner shared the news with the BBC. Moody said he was finding it difficult to accept what the diagnosis meant for his future and his family, though his symptoms were relatively mild, including some [...]
A mother and son are bringing a series of comedy nights to East Sussex, raising funds and awareness of motor neurone disease (MND). Rona and Anthony Stephens-Hill launched the project in memory of dad Adrian, which has already secured venues across the county. Their goal is to raise £20,000 for the MND Association and the [...]
Three colleagues will walk 40 miles from Cumbernauld to Edinburgh to raise money for a workmate diagnosed with motor neurone disease. Riello UPS employees are making the trek to support 58-year-old project manager Peter Walthall from Cheadle, who was diagnosed in December 2024. Adam Greer, Steven O'Brien and Jack Will will follow Route 754 along [...]
Dr Oscar Wilkins has received the inaugural Rob Burrow Early Career Researcher Prize for his work on motor neurone disease treatments. The annual award, launched by the MND Association in honour of its late patron and rugby league legend Rob Burrow CBE, recognises outstanding UK-based researchers early in their academic careers. Dr Wilkins received the [...]
By Caroline Purslow, Head of Health, Challenge Works In July, following a lengthy regulatory review process and heavy patient campaigning across the UK - which gained extensive media coverage - the Medicines and Healthcare Products Regulatory Agency (MHRA) approved the use of Tofersen to treat those who are living with ALS (the most common form [...]
Researchers have shown how faults in DNA repair, caused by gene mutations, can lead to motor neurone disease, pointing to possible new treatment targets. The study found that mutations in the CFAP410 gene make neurones more vulnerable to DNA damage, rather than disrupting cell structures as once believed. Motor neurone disease (MND), also called amyotrophic [...]
A 65-year-old father-of-three with motor neurone disease (MND) has broken four wheelchair Guinness World Records in a single day. Paul Jameson, from Godalming in Surrey, who can no longer walk or talk, described his feat as a journey from “tragedy to triumph”. The entrepreneur was diagnosed in June 2017 with progressive bulbar palsy (PBP) – [...]
An MND patient who lost her voice 25 years ago can now speak again after AI rebuilt it from an eight-second VHS clip. Sarah Ezekiel, 59, from Hendon in London, was left unable to speak or use her hands when motor neurone disease (MND) – a condition that damages the brain and nerves – struck [...]
Researchers have discovered why some nerve cells resist ALS and identified protective factors that could open new paths for treatment. By examining millions of messenger RNA molecules during disease progression, scientists found that motor neurons controlling eye muscles resist ALS because they sustain high levels of protective proteins. The study focused on a hereditary form [...]
Charity rowers mistaken for migrants by an MP have finished the first leg of their Britain circumnavigation, reaching the Forth Bridge near Edinburgh. The Row4MND crew rowed around 900 miles since leaving Land’s End on 25 July, burning 450,000 calories while battling sleep deprivation and exhaustion. They are raising money for Leeds Hospitals Charity, the [...]
