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Caring for dementia care-givers – a novel approach

NR Times meets Sara Masoud, programme leader of a groundbreaking dementia carers initiative that recognises the importance of culture, community and research representation.

As a teenager living in Southern Texas, Sara Masoud found herself caring for her elderly grandfather as he began to develop signs of dementia. Her family knew nothing of the condition. “We operated from a place of love and compassion, but we had no idea what dementia was,” Masoud tells NR Times. But that experience has helped to shape her current role as programme director of the Caring for the Caregivers project at the University of Texas Health Science Centre. Read on to find out how the programme is pioneering a new approach based on community engagement, understanding of cultural barriers and a mission to for research trial inclusion.
By |2024-01-12T21:37:06+00:0020 April 2023|Dementia|

“It’s all about freedom” – the charity making the ocean accessible to all

A charity founded by the first disabled man to sail across the Atlantic is giving people with complex disability the chance to experience the open water.

Last year, 6000 disabled people, many of them living with severe neurological conditions and complex disability, were given a rare opportunity to experience the freedom of the open sea. The voyages were organised by Wetwheels Foundation, a charity founded in 2011 by disabled yachtsman Geoff Holt MBE. Holt was the first disabled person to sail around the British Isles and the first to sail across the Atlantic. He was already helping disabled people access the joys of the ocean as chairman of the Royal Yachting Association’s Sailability, a project that has allowed 20,000 disabled people to experience sailing. But there was a gap for people with more complex and severe conditions.
By |2024-01-16T11:55:43+00:0012 April 2023|Brain injury, News|
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